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Latest news and stories

Get clinical and research updates, read member stories and find out how you can get involved and support us.

Liam's Story: Crohn's and Addison's

Liam shares his experience of living with both Crohn's disease and Addison's disease, following years of treatment with steroid medication and multiple major surgeries. His story highlights the challenges of diagnosis, recovery and learning to manage two complex long-term conditions.

10 December 2020

Joy, a medical detection dog for adrenal insufficiency

Jenn's Story: Cortisol Medical Detection Dog

Read Jenn’s inspiring story of living with secondary adrenal insufficiency after being diagnosed with Sheehan’s Syndrome and experiencing repeated adrenal crises. Discover how Joy, her cortisol medical detection dog, has helped restore her confidence, independence and day-to-day safety.

30 November 2020

Thanooshan's Story: Law degree or Addison's disease?

Diagnosed with Addison's disease after an adrenal crisis, Thanooshan began his law degree less than a year later. He shares how learning to balance his health, studies and wellbeing helped him succeed at university.

17 September 2020

Hand holding NHS Steroid Emergency card

Updated NHS Steroid Card Released

2 August 2020

SOLUtion medical logo

Meet the Researcher: Julia Anthony, SOLUtion Medical

Discover how Julia Anthony and SOLUtion Medical are working to transform adrenal crisis care through the development of an innovative auto-injector for emergency hydrocortisone treatment. Funded by the Addison's Disease Self-Help Group (ADSHG), this pioneering research aims to make life-saving injections simpler, faster and easier to use for people living with adrenal insufficiency.

29 July 2020

Share Your Kit Campaign

Explore the ADSHG's #ShareYourKit campaign and see how people with Addison’s disease and adrenal insufficiency store and carry their emergency hydrocortisone injection kits. Get inspiration, practical tips and advice to help you stay prepared for an adrenal crisis.

4 June 2020

Deana Kenward, ADSHG Founder

Deana's Story: ADSHG Founder

From her diagnosis, the letter to the TV Times that began the charity, to receiving her MBE for years of dedicated service, we chart the journey of the founder of the Addison's Disease Self-Help Group. 

29 April 2020

Jennifer and her mum

Jennifer's Story: emergency surgery during COVID

Jennifer shares her hospital admission and emergency surgery story during COVID-19, including how her Addison’s disease was safely managed throughout treatment. Learn what helped her feel prepared and reassured during a challenging time.

2 April 2020

Helen Loo, award winner, alongside Deana Kenward, ADSHG founder and Alison Mainwairing, ADSHG volunteer

Women in Science Day: 2020

Women in Science Day provides an opportunity to recognise the researchers, nurses, clinicians and innovators who continue to improve the lives of people living with Addison's disease and adrenal insufficiency. At the Addison's Disease Self-Help Group, we're proud to support research that advances patient care, safety and understanding of these rare conditions.

11 February 2020

ADSHG Research Grant 2020 Awarded to Mendelian

1 January 2020

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©2026  Addison's Disease Self-Help Group.
Registered Charity No 1179825. Company No CE015063.
Registered Office: 117 Kingsley Avenue Rugby  CV21 4JZ

Genetic Alliance UK Member Affiliated with Society for Endocrinology Affiliated with European Society of Endocrinology Registered with Fundraising Regulator

The information contained within this website is not intended to provide clinical diagnosis and/or personalised medical advice. It should not be treated as such. Always seek the advice of your doctor or a health care professional before starting any new treatment for your underlying condition. While we have taken every care to compile accurate information to reflect the current state of knowledge, we cannot guarantee its correctness and completeness.

The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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Information provided by ADSHG is not a substitute for professional medical care and should not be used for diagnosing or treating a health problem. If you have or suspect you may have a health problem, you should consult your doctor.

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While we have taken every care to compile accurate information to reflect the current state of knowledge, with support from our Clinical Advisory Committee, we cannot guarantee its correctness and completeness. The information provided in this website does not constitute business, medical or other professional advice, and is subject to change. In no event will the Addison’s Disease Self-Help Group or any of the contributors be responsible or liable directly or indirectly, for damages or liabilities relating in any way to the use (or misuse) of information contained within or referred to in this website.

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