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Anna Power, an international British showjumper, shares her experience of living and competing with Addison's disease since her diagnosis in 2011. Discover how she manages medication, travel, training and competition while continuing to perform at the highest level of her sport.
21 November 2022
New standalone guidance for steroid-dependent patients has been added to the Joint Royal Colleges Ambulance Liaison Committee (JRCALC) guidelines, helping ambulance clinicians deliver faster and more consistent emergency care. Developed with input from the Addison's Clinical Advisory Panel and ADSHG, these guidelines reinforce the urgent treatment of adrenal crisis and improve patient safety across the UK
28 May 2022
Sarah shares her experience of living with Addison's disease, Type 1 diabetes and mental health challenges, and how she found strength through community and creativity.
27 May 2022
What happens when someone with adrenal insufficiency is admitted to hospital? Endocrine Nurse Specialist Becci Watling explains how an innovative alert system is helping improve patient safety, treatment and support.
26 May 2022
Ali Maloney, author of Spinning through Fog (High Salt Content): Addison's Disease and Hormonal Treatment, shares his experience of diagnosis, recovery and living well with Addison's disease. Through his personal story, he offers hope, insight and reassurance for others navigating life with adrenal insufficiency.
26 May 2022
Read Adam’s inspiring story of being diagnosed with Addison’s disease as a child and going on to play semi-professional football for 15 years. Discover his practical tips for exercise, medication, recovery and staying active while managing Addison’s disease.
24 January 2022
National recognition at the HSJ Awards is a significant milestone for everyone involved in improving steroid safety across the NHS. As a finalist in the Patient Safety Award category, the NHS Wide Steroid Safety Strategy has shone a spotlight on the urgent need to protect steroid-dependent patients from preventable harm. Driven by collaboration between clinicians, NHS organisations and patient groups, the strategy is helping to raise awareness, empower patients and save lives through initiatives such as the NHS Steroid Emergency Card.
18 November 2021
Read how Becca overcame the challenges of Addison's disease to complete a 10-mile fundraising walk, sharing practical tips, positivity and inspiration for others living with the condition
21 September 2021
Suzanne shares her experience of participating in the ULTRADIAN study, testing the innovative U-RHYTHM device designed to monitor cortisol levels over 24-hours and support future improvements in Addison's disease treatment.
3 September 2021
Dr Sofia Llahana, recipient of the ADSHG's Alfred Potter Memorial Medical Research Award, is leading an important study exploring self-management, patient education and care services for people with adrenal insufficiency. Her research aims to identify barriers and opportunities that can improve patient support, reduce the risk of adrenal crisis and shape future standards of care.
29 July 2021