Get clinical and research updates, read member stories and find out how you can get involved and support us.
Giulia Bould, a sports presenter for BBC Radio Merseyside, shares her journey from a delayed diagnosis of Addison's disease to building a successful career while managing a rare lifelong condition. Her story highlights the importance of self-advocacy, preparation, energy management and raising awareness of adrenal insufficiency within healthcare and the wider public.
1 July 2023
Associate Professor Ian Ross of the University of Cape Town is raising awareness of adrenal insufficiency as a potentially overlooked complication of HIV and its associated treatments. Drawing on years of research and clinical experience, he highlights the importance of recognising adrenal insufficiency in people living with HIV and improving diagnosis and care.
5 June 2023
Read Dan Stewart’s firsthand account of experiencing an adrenal crisis and emergency hospital admission while living with Addison’s disease. Learn practical advice on emergency injections, steroid emergency cards and how to be prepared when every minute matters
20 April 2023
Working with the Royal College of General Practitioners (RCGP), the ADSHG has launched a free eLearning module to improve GP awareness of adrenal insufficiency and Addison's disease. The course helps healthcare professionals recognise symptoms, support earlier diagnosis and improve the management of adrenal crisis and long-term care.
18 April 2023
Good care coordination can make a significant difference to people living with Addison's disease and adrenal insufficiency, helping to improve safety, confidence and quality of life. Sherwin Criseno explains how the innovative '4E framework', Engage, Educate, Equip and Empower, is helping patients, carers and healthcare professionals work together to prevent adrenal crisis and support effective long-term condition management.
20 February 2023
The Addison's Disease Self-Help Group (ADSHG) is proud to partner with The Wren Project to offer free, one-to-one emotional support for people affected by adrenal insufficiency and other autoimmune conditions who may be struggling with the challenges of diagnosis and long-term condition management. Through compassionate listening and shared understanding, this partnership helps individuals feel less isolated, build resilience, and navigate their health journey with greater confidence.
11 January 2023
Discover the story behind Dr Gary Hammer's award-winning adrenal gland artwork 'Stress Deconvoluted', and learn why collaboration, patient advocacy and endocrine research are essential to improving outcomes for people with adrenal conditions.
15 December 2022
Working with NHS Digital, the ADSHG helped update the NHS information on Addison's disease to reflect current best practice, expert guidance and patient needs. The updates include improved information on emergency injection kits, steroid emergency cards, Sick Day Rules and support services for people living with adrenal insufficiency.
2 December 2022
People with Addison's disease and adrenal insufficiency should always carry their emergency injection kit, yet some venues still challenge the use of essential medical equipment at events. This guide explains your rights, practical steps to avoid problems at venues, and how to ensure you can safely enjoy concerts, festivals and nights out while keeping your medication close by.
29 November 2022
Joanne Brown, an Endocrine Clinical Nurse Specialist at Stockport NHS Hospital, shares how she created an Addison's Disease Awareness Day stand to educate healthcare professionals about adrenal insufficiency and steroid dependency. Her experience highlights the value of raising awareness in hospitals and improving patient safety through education and engagement.
22 November 2022