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After experiencing a life-threatening adrenal crisis at just 17 years old, Liv's life changed forever. In this inspiring personal story, she shares her journey of recovery, learning to live with Addison's disease, and how discovering yoga helped her build confidence, resilience and a rewarding new career.
9 April 2026
Nearly 50 people affected by adrenal insufficiency attended an ADSHG emergency injection training event near Newcastle, delivered in partnership with Northumbria Healthcare NHS Trust. Led by Jane Craig and Joanne Wardle, the session combined Sick Day Rules education, hands-on injection training and peer support to help attendees feel more confident and prepared.
1 April 2026
Advanz Pharma has confirmed the permanent discontinuation of liquid hydrocortisone (hydrocortisone sodium phosphate), for the prevention and treatment of adrenal crisis. Whilst this news is concerning, hydrocortisone sodium succinate (powder) is an effective alternative and support, training and guidance are in place to help build confidence in emergency injection preparation.
12 March 2026
The ADSHG attended the Society for Endocrinology British Endocrine Conference (BES) 2026, sharing the experiences of people living with adrenal insufficiency and strengthening relationships with healthcare professionals and researchers.
12 March 2026
Many people with adrenal insufficiency, including Addison's disease, are still receiving only one-month supplies of essential steroid medication, creating challenges for self-management and patient safety. Explore the ADSHG's survey findings and access practical resources to help you work with your healthcare team to secure a three-month prescription.
2 February 2026
For many people living with Addison's disease and adrenal insufficiency, achieving the right hydrocortisone dose can be a delicate balancing act. When lower doses are needed, patients are often advised to split tablets, but this can present practical challenges, including difficulties achieving accurate dosing and concerns about consistency.
22 December 2025
Minister Ashley Dalton who is responsible for rare diseases in Westminster, confirmed that the framework will now continue until 2027.
1 December 2025
Due to the overwhelming response to Zöe Defoe’s (Anglia Ruskin University (ARU)) initial research, she is now offering another opportunity for people with Addison’s disease to have their voices heard.
13 November 2025
On 30 September, we were delighted to welcome more than 100 of you to our free online Wellbeing webinar, run in collaboration with Rareminds. Watch it back here.
11 November 2025
Help shape research into fatigue in adrenal insufficiency by taking part in this online research survey, led by Professor Simon Pearce (Newcastle University) in collaboration with the Addison’s Disease Self-Help Group (ADSHG).
10 November 2025