Correction to Adrenal Crisis Guidelines and ADSHG Steroid Emergency Card content
We recently identified an error on two of our publications: the Adrenal Crisis Guidelines form, and the ADSHG Steroid Emergency Card.
17 October 2025
Behind the Research: Factors Influencing Self-Management of Adrenal Crisis
Aldons Chua, an Endocrine Clinical Nurse Specialist and researcher, shares the findings of a study exploring the factors that influence how people with adrenal insufficiency manage an adrenal crisis. The research highlights the challenges, barriers and support systems that affect self-management, helping to improve future education, treatment and patient safety.
21 August 2025
Crystal’s story: From diagnosis into strength - the power of exercise for my Addison’s
Crystal’s journey with fitness took an unexpected turn five and a half years ago when she was diagnosed with Addison’s. As a personal trainer, she’s learned to adapt, listen to her body, and find strength in vulnerability.
19 August 2025
Ruth’s Story: Tertiary Adrenal Insufficiency
Meet ADHSG member Ruth, a retired Academic Clinical Psychologist with a diagnosis of Tertiary Adrenal Insufficiency (TAI).
11 August 2025
Supporting A Study Day at University Hospital Wales, Cardiff
The ADSHG was proud to support an Adrenal Insufficiency Study Day at University Hospital Wales (UHW) in Cardiff, helping to educate junior doctors and nurses about the identification and management of adrenal insufficiency. The event combined clinical education, patient experience and practical resources to improve awareness and patient care.
29 July 2025
Sephira – The Irish Rock Violinists Story: Know the Signs, Save a Life
To mark Addison's Disease Day 2025, sisters Joyce and Ruth O'Leary of Sephira, The Irish Rock Violinists, share their experience of living and performing with Addison's disease. From recognising the warning signs of low cortisol to managing emergencies on tour, their story highlights the importance of preparation, self-awareness and early action.
28 May 2025
Hilary's Story: The Importance of Support Groups
Hilary shares how joining support groups transformed her understanding of adrenal insufficiency, helping her learn essential self-management skills and gain confidence.
20 March 2025
'Be Patient' by Tilly Rose
Tilly Rose, an author and patient advocate living with adrenal insufficiency, shares her journey from diagnosis and adrenal crisis to writing her memoir, Be Patient. Through her story, she highlights the realities of living with a rare condition, navigating healthcare systems and using personal experience to drive positive change in patient care.
6 March 2025
Eddie & Grace's Story: Family Matters
Eddie and Grace share how Addison's disease changed their lives, strengthened their bond, and shaped Grace's career as a doctor as well as a clinical ambassador for Medics4RareDisease,
25 February 2025
Mauve's Story: My Addison's Journey
Read Mauve's inspiring Addison's journey, from a life-threatening diagnosis at age 29 to becoming a passionate advocate, artist and voice within the adrenal insufficiency community.
13 February 2025