Treatment Refusal Letters

We hope you don't need them but... these letters, approved by our Clinical Advisory Panel, are to present to medical staff if you are refused your time-critical steroid medication whilst an inpatient, or an emergency injection when needed to prevent or treat adrenal crisis.

Due to it's rarity, there remains a lack of awareness of Addison's and adrenal insufficiency in some healthcare professionals. The aim of these letters is not to aggravate health care professionals who are there to help support you, but rather to emphasise the critical nature of the interventions required, and to signpost them to the NICE guidelines on the Identification and Management of Adrenal Insufficiency.

Emergency Injection Refusal Letter

A letter for you to present to medical staff if you are refused emergency treatment for suspected adrenal crisis. 
 
It signposts the medical staff to the NICE Guidelines and asks them to sign to agree that they have been informed of the risks of not providing you with emergency treatment.

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Glucocorticoid Medication Refusal Letter

A letter for you to present to medical staff if you are refused your usual time-critical steroid replacement medication.

It signposts the medical staff to the NICE Guidelines and asks them to sign to agree that they have been informed of the risks of not providing you with your steroid replacement medication.

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3-month prescription letter

For a long time, you have been telling us how hard it is to manage your condition when you’re only given a one-month supply of essential steroid medication. It’s not just inconvenient - it can feel risky and exhausting. 

The 3-Month Prescription Request Letter template is for you to complete and share with your GP practice. This letter explains why you should be prescribed a 3-month supply of your essential steroid medication, covering Sick Day dosing, spare for travel, GP record prompts and more.

You can learn more about our work with healthcare professionals to improve this through the Prescription Frequency Project. 

A letter template for you to send to your GP, to explain to them why you need 3-month prescriptions of your essential steroid medication.  

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Summary Care Record Letter Template

Following review in 2024, the AACE (Association of Ambulance Chief Executives) recommended that 'Red Flags' should no longer be used by ambulance trusts as a way of highlighting to an emergency call handler on a 999 call that there was a person at that address who is steroid dependent and at risk of adrenal crisis. 

Instead, the focus is on a record called your Summary Care Record, which ambulance staff, along with other healthcare professionals, can access. Your Summary Care Record shows the health conditions you have and the treatment you require.
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For this reason, it's now important to make sure that your Summary Care Record is up-to-date and contains details of both your steroid dependency and what medication you require. Please read our full article about the end of 'Red Flagging' and to understand more about your Summary Care Record.

The letter template lists the checks your GP can easily make on their system to ensure your Summary Card Record is up-to-date. We have worked with GPs and The Pituitary Foundation to co-author this letter for you to complete and then give to your GP at your next appointment, or hand it into reception.

This helps ensure that your GP understands what they need to do to ensure your Summary Care Record is correct.

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