UK Groups for associated autoimmune conditions

Achalasia Research UK

Alopecia UK

ALD Life

Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN)

AMEND

Association for Multiple Endocrine Neoplasia Disorders

Asthma UK

British Sjogren's Syndrome Association

British Thyroid Foundation

Coeliac UK

Crohn's and Colitis UK

Diabetes UK

Parathyroid UK

Living with CAH

(Congenital adrenal hyperplasia)

National Rheumatoid Arthritis Society

Pernicious Anaemia Society

The Pituitary Foundation

The Vitiligo Society

Professional UK Endocrine Associations

Society for Endocrinology (SfE)

The Society for Endocrinology, established in 1946, is a registered charity and a leading authority on hormone science, bringing together a global community of professionals in endocrinology. It aims to advance scientific and clinical education, support professional development, engage the public, and promote collaboration across the global endocrine community.

The ADSHG is proud to be an affiliate of the SfE, which supports several endocrine-related charities, many of which are listed above. We are grateful for the coordination and assistance it provides. 

Society for Endocrinology

The SfE also maintains a public information website, You and Your Hormones, which has a range of educational materials and a specific page on Addison's disease.

British Association of Endocrine and Thyroid Surgeons

British Association of Endocrine and Thyroid Surgeons

The Endocrine Society

The Endocrine Society

National & International Umbrella Support Groups

Genetic Alliance (UK)

A non-profit organisation that provides programs, tools and support for individuals, families and communities, to transform health

National Voices (UK)

A charity advocating for more inclusive and person centred care in England

National Council of Voluntary Organisations (UK)

The NCVO is a charity that represents and supports charitable organisations in England

AdrenalNET

An initiative of the Dutch Adrenal Network that seeks to unite information about adrenal insufficiency across Europe in a central repository and improve patient care.

International Adrenal Disease Patient Consortium

an initiative by the American (NADF) support organisation, bringing together adrenal disease patient support groups across the world in regular meetings to share knowledge and join together on campaigns.

Endo-ERN

Endo-ERN’s mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe through facilitating knowledge sharing and related healthcare and research.

Worldwide Adrenal and Pituitary Organisatoins

A not for profit organisation dedicated to uniting the international pituitary and adrenal patient community

Worldwide Addison's and Adrenal Insufficiency Patient Advocacy Groups

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