A winning formula
From your feedback to our events, we have got a good understanding of what you find helpful, and why you want to come along. We don't want to fix what isn't broken, so we run a tried and tested program at our events:
- A medical presentation on a topic of interest to the adrenal insufficiency community, that changes every time.
- A Q&A with a panel of endocrine healthcare professionals
- Breakout groups on a topic you choose
- Plenty of time for mingling with tea/coffee and pastries
- An opportunity to talk to charity staff and volunteers
- Our ADSHG pop up shop
Where possible, we also include an optional injection training session. (dependent on venue).
Q&A Expert Panel
Having the opportunity to ask questions and clarify your understanding of your condition with experts in the endocrinology world is one of the major draws of attending a Member Get-Together. Routinely voted 2nd or 3rd in the list of favourite things about an event (after the presentations and meeting others who understand), we are grateful to the healthcare professionals who volunteer their time and share their expertise with us.
Reading,
Mar 2026
As someone who is relatively newly diagnosed the day was so informative and empowering. It was also great to be able to talk to others who have the condition and understand what it's like. The whole day was well organised and the work the charity do to support its members is truly amazing - thank you so much!"
We have included a brief summary of our most recent Get-Togethers below:
Presentation: Adrenal Crisis Management Research
Dr Sofia Llahana from City St. George's University in London, joined us to share her recent research into adrenal crisis management.
Medication Management Breakout Group
A refresher on all things medication! A chance to ask your questions on topics including: dosing timings and regimes, Sick Day Rules, different medication brands, the emergency injection and more!
Health & Lifestyle Breakout Group
A refresher on topics around managing your condition from day-to-day, including fatigue, stress-management, exercise and nutrition. An opportunity to explore how to live optimally in an expert-facilitated discussion.
Newcastle,
Aug 2025
I was worried that the event would be focused on positive thinking and how you can still do everything, but I only heard JFK mentioned once, and no one said we can still run marathons! I was relieved as Addison's can make everyday life hard, and it's good to have that acknowledged.
Having the shop was so useful, and having drinks on arrival was much appreciated.
Presentation: Why do I have Addison's or adrenal insufficiency
Professor Simon Pearce, clinical academic endocrinologist specialising in thyroid and adrenal diseasees, joined us from Newcastle University to explore the answers to a common question we here.
Steroid dependency ++ Breakout Group
For people with multiple health conditions: advice from the experts on how to approach the complexities
Support the Supporters Breakout Group
For those who support or care for someone with AD or AI: A chance to discuss any concerns, explore avenues of support, and learn from others.
Medication Management
A refresher on all things medication! A chance to ask your questions on topics including: dosing timings and regimes, Sick Day Rules, different medication brands, the emergency injection and more!
Health & Lifestyle Breakout Group
A refresher on topics around managing your condition from day-to-day, including fatigue, stress-management, exercise and nutrition. An opportunity to explore how to live optimally in an expert-facilitated discussion.
Birmingham
Apr, 2025
I thought it was very well run and organised. You packed lots into a very short space of time. There was a real buzz in the room. The biggest ‘vibe’ being with other people with Addison's disease. People just kept saying ‘I’ve never met anyone with Addison's disease before!’ I left on a real high with the added reminder how rare this disease is and how much you need the support of others. Thanks to all those involved in organising and I’m looking forward to next year!"
Presentation: When to consider an alternative steroid replacement to hydrocortisone
Dr Agata Juszczak, consultant Endocrinologist from Birmingham University joined us to help us understand about alternatives to hydrocortisone daily replacement medication.
Steroid dependency++ Breakout Group
For people with multiple health conditions: advice from the experts on how to approach the complexities
Support the Supporters Breakout Group
For those who support or care for someone with AD or AI: A chance to discuss any concerns, explore avenues of support, and learn from others.
Medication Management Breakout Group
A refresher on all things medication! A chance to ask your questions on topics including: dosing timings and regimes, Sick Day Rules, different medication brands, the emergency injection and more!
Health & Lifestyle Breakout Group
A refresher on topics around managing your condition from day-to-day, including fatigue, stress-management, exercise and nutrition. An opportunity to explore how to live optimally in an expert-facilitated discussion.