Working with your GP
As your 'most accessible' healthcare provider, your GP plays an important role in supporting you, and helping you to best manage your adrenal insufficiency. Adrenal insufficiency is rare, so they may need signposting to information and resources - and we have plenty you can share with them.
Be prepared for health appointments
Specialist support
Your Endocrine Team
Understand the role of your endocrinologist and their team, what you can expect from them, and what they need from you...
Depending on where you live, you may or may not have access to an endocrine nurse as well as your endocrinologist.
Do you have multiple health conditions?
Depending on what type of adrenal insufficiency you have, you may also have other health conditions alongside it.
We explore some of the challenges and offer some practical tips to help, with the biggest being that there is much to be gained from connecting with people who understand the types of challenges that you face in managing your conditions.
Coping with mulitple health conditions
What happens when your care doesn't go to plan?
People with rare and invisible conditions like adrenal insufficiency are sometimes misunderstood or overlooked in healthcare settings.
This can be frustrating, distressing, anxiety-inducing and even dangerous.
Speaking up helps improve care — not just for you, but for others too.
