Newly diagnosed or want to learn more?

In the weeks and months following your diagnosis, you, and the people close to you, will have lots of questions about your condition and what it means for your future.

We're here to make you aware of the condition, prepared to manage your health and understood by helping you to explain your condition to others.

Learn how to live with adrenal insufficiency.

Be aware

Knowledge is power! Find out more about Addison's and adrenal insufficiency, what effect your diagnosis will have on your life and about the treatment options available.

What are Addison's and adrenal insufficiency?

Addison’s disease and adrenal insufficiency are rare life-threatening endocrine conditions where the adrenal glands cease to function.

Diagnosis

Diagnosis is done by hospital blood tests and an assessment of the symptoms. Find out more about the process.

Person holding medication tablets and a glass of water

Treatment & medication

People with adrenal insufficiency are steroid-dependent and must follow a time-critical medication regimen. Learn more.

Day-to-Day Living

Lifestyle and Wellbeing

Find out how your lifestyle can affect and potentially improve your condition. Be inspired to make changes that support your wellbeing: healthy eating, exercise, sleep and managing stress.

Lifestyle & Wellbeing

Resources and publications

We have a range of resources available to download or buy that will teach you about the conditions and help you and the people around you to manage them day-to-day. From leaflets, to videos, to books and more...

Explore our materials to download or buy

Be prepared

Learn how to optimally manage your condition and be prepared for the tough times. Being well-informed, listening to your body and following clinical guidelines helps you to feel better, look after your health and feel more confident.

Sick day rules

Find out how to help keep you safe and reduce the chances of an adrenal crisis when you are feeling off-colour, injured or ill.

Adrenal Crisis: know what to do in an emergency

It’s vitally important you learn the signs of an impending crisis and what to do in this medical emergency.

Hospital visits

Tips to help you and those supporting you, to manage Addison’s or adrenal insufficiency throughout a hospital appointment or stay.

Adrenal crisis treatment: emergency hydrocortisone injection

Learn about when to give an emergency injection, and how to prepare it

Emergency Injection Kits

Why you need one, what is in one, and where do you keep it

Managing stress of a long-term condition

See our advice and information for looking after your mental health and emotional wellbeing

Injection training

Learn how to feel confident and prepared should you need to use your emergency injection kit for an adrenal crisis.

Be understood

Understand the importance of communicating your steroid-dependency to healthcare professionals. Learn how to make others aware of your condition and your specific needs so that they better understand how to support you.

Working with your Healthcare Team

Find advice, tips and resources for communicating your condition effectively with your healthcare team, whether it be your GP, endocrine team, paramedics or dentist!

Emergency Steroid Cards & different types of medical ID

It is critically important to carry a steroid emergency card to identify your steroid-dependency and signpost to information on managing adrenal crisis

How Technology Can Support You

Let apps and devices assist you in managing your treatment, and highlighting your condition to healthcare professionals when needed

Advice

Join our online community

Our Forum is a vibrant community of members offering mutual support and help. Share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's and adrenal insufficiency.

Online community

Supporting someone with adrenal insufficiency?

Are you a Young Person with Addison's or another type of adrenal insufficiency?

It is less usual to be diagnosed with adrenal insufficiency when you are young, but it is not unheard of! You are not alone! Let us help you get to grips with your diagnosis, and help those around you at home and at school, understand it too.

Young People with adrenal insufficiency (11+)

Next steps to explore

Become a member

Feel less alone by joining a community that understands what you have experienced during your diagnosis, and how it feels to live with adrenal insufficiency

Attend an event

Take a look at our upcoming events. Our volunteers run local support meetings as well as our bi-annual face to face member get-togethers and online events where you can find support.

Shop for items to help you

We have a selection of products to help you manage and raise awareness of your condition, alongside other items that we think you will enjoy from day-to-day.