Newly diagnosed?

Newly diagnosed with Addison’s disease or adrenal insufficiency

In the weeks and months following your diagnosis, you, and the people close to you, will have lots of questions about your condition and what it means for your future.

We're here to make you aware of the condition, prepared to manage your health and understood by helping you to explain your condition to others.

Be aware

Find out more about Addison's and adrenal insufficiency, what effect they will have on your life and how the conditions are treated.

What is Addison's and adrenal insufficiency?

Addison’s disease and adrenal insufficiency are rare life-threatening endocrine conditions where the adrenal glands cease to function.

Diagnosis

Diagnosis is done by hospital blood tests and an assessment of the symptoms. Find out more about the process.

Person holding medication tablets and a glass of water

Treatment & medication

With the correct treatment people with Addison’s disease and adrenal insufficiency can lead normal lives.

Resources and publications

We have a range of resources available to download or buy that will teach you about the conditions and help you and the people around you to manage them day-to-day.

Explore our materials to download or buy

Be prepared

Learn how to manage your condition. Being well-informed helps you to look after your health and make you feel more confident and in control.

Sick day rules

Find out how to help keep you safe and reduce the chances of an adrenal crisis when you are feeling off-colour, injured or ill.

Adrenal crisis managment

It’s vitally important you learn the signs of an impending crisis and what to do in this medical emergency.

Hospital visits

Here are our tips to help you and those looking after you to manage Addison’s or adrenal insufficiency throughout your hospital stay.

Lifestyle and wellbeing

Find out how your lifestyle can effect and improve your condition and the changes you should make to lead a fuller life.

Injection training

Learn how to feel confident and prepared should you need to use your emergency injection kit for an adrenal crisis.

Managing stress of a long-term condition

See our advice and information for looking after your mental health.

Be understood

Find out how to communicate your condition and your specific needs to people around you and how you can help it be understood more.

Working with your Healthcare Team

Find advice, tips and resources for communicating your condition effectively with your healthcare team.

Emergency steroid & medical ID

Carrying a steroid card identifies to healthcare professionals that your medication cannot be stopped.

Take part in research

You could help further the understanding of these conditions as well as improving care for people now and in the future.

Advice

Join our online community

Our Forum is a vibrant community of members offering mutual support and help. Share experiences, ask questions, make new friends and discuss the practicalities of living with Addison's and adrenal insufficiency.

Online community

Your next steps

Become a member

Help us continue to work towards our common goals of helping those with adrenal failure, funding vital research and promoting better medical understanding.

Join an event

Take a look at our upcoming events. We run local support meetings, annual and online events for you to find support.

Shop for items to help you

We have a selection of products to help you manage and raise awareness of your condition alongside other items that we think you will enjoy from day to day.